(The poems on this blog were written during the time when our little heart warrior was recovering from his surgery, at 4 months of age.)
The child appears whole,
doing the things that life requires
as he did before it happened,
before the sleep and the knife.
But in the depths of his heart
he is raw and healing,
even as he breathes
Do not let pain or fear
rule the day,
one breath and then the next,
hearts heal, given time.
If you will,
Here is an excerpt from Audra's blog.
"The thing about heart warriors is they do not remember the beginning of their journey. They have no memory of the long wait for the cardiologist to come back to the room and crush our dreams. They don't remember the hours when their hearts did not
while a surgeon held them in their hands. They are warriors because they survived so beat, while being so little very little. They are warriors because they bear battle scars for all to see. And they are warriors because the thing about a CHD diagnosis is that it is a life long battle. Holes can be patched, valves can be replaced, and all sorts of other miracles can happen to the human heart, but for the rest of their much, their heart history will follow them. Zane can never get life insurance and until recently health insurance was not guaranteed to adults with a pre- lives condition. All congenital heart defects are pre- exisiting , they existed before they were born. The battle to keep this right to insurance is sure to continue in the political world for years to come. This just one example of another battle our warriors will have to fight. They are warriors because the battles continue forever. They keep conquering, keep beating the odds, keep being brave, and keep fighting a fight for which they never volunteered." exisiting
If you are interested in donating to help fund ongoing research for CHD, here are three of her favorite sites for donation.
" Mended Little Hearts. This is who I do the Roar-N-Race with during CHD awareness week. They are a wonderful resource for heart families and deliver bravery bags to heart families who are in the hospital. The one that I donate to where most of the money
to research into ways to treat CHD is The Children's Heart Foundation. And lastly, we donate to Samaritan's Purse which is a world medical mission that helps people in other countries have access to life-saving open heart surgery for their little heart warriors." goes